Bethany

“The tensions between prayer and work, or contemplation and action, have been the topic of much discussion and argument. Some people put all their energy into prayer, believing that through prayer God will act in the world. Other people put all their energy into work, believing that only through the efforts of human hands and hearts will the work of the world get done. Still others see the need for both prayer and work but are puzzled whether one is more important than the other. I believe that the tensions we experience are actually not between contemplation and action, but between contemplation and agitation or between action and escapism.

(from Praying with Body and Soul, 105)”
― Jane E. Vennard, Praying with Body and Soul: A Way to Intimacy with God

“And the deal with so many chronic illnesses is that most people won't want to believe you. They will tell you that you look great, that it might be in your head only, that it is likely stress, that everything is okay. None of these are the right things to say to someone whose entire existence is a fairly consistent torture of the body and mind. They say it because they are well-intentioned usually, because they wish you the best, but they also say it because you make them uncomfortable. Your existence is evidence of death. . . .”
― Porochista Khakpour, Sick: A Memoir

“What worries me most about the proposals for legalized assisted suicide is their veneer of beneficence—the medical determination that for a given individual, suicide is reasonable or right. It is not about autonomy but about nondisabled people telling us what’s good for us. In the discussion that follows, I argue that choice is illusory in a context of pervasive inequality. Choices are structured by oppression. We shouldn’t offer assistance with suicide until we all have the assistance we need to get out of bed in the morning and live a good life. Common causes of suicidality—dependence, institutional confinement, being a burden—are entirely curable.”
― Alice Wong, Disability Visibility : First-Person Stories from the Twenty-first Century

“I may not find joy every day. Some days will just be hard, and I will simply exist, and that’s okay, too. No one should have to be happy all the time—no one can be, with the ways in which life throws curveballs at us. On those days, it’s important not to mourn the lack of joy but to remember how it feels, to remember that to feel at all is one of the greatest gifts we have in life. When that doesn’t work, we can remind ourselves that the absence of joy isn’t permanent; it’s just the way life works sometimes. The reality of disability and joy means accepting that not every day is good but every day has openings for small pockets of joy.”
― Alice Wong, Disability Visibility : First-Person Stories from the Twenty-first Century